Open letter from Kerry posted on Tidesports.com
Beyond the Ice Bucket Challenge
I guess the secret is out…
Last year, when I was participating in the Ice Bucket Challenge for my dear friend and teammate, Kevin Turner, never did I stop to think that the life I was working to save would be my own.
A little over a year ago I start to experiencing unexplained muscle spasms and twitches. After multiple trips to every branch of medicine possible and extreme weight loss finally came the answer. I was recently diagnosed with amyotrophic lateral sclerosis (ALS), also known as “Lou Gehrig’s disease.
ALS, is a progressive neurodegenerative disease without any effective treatments or a cure. Most people living with ALS only survive two to five years following diagnosis. I’ve always prided myself with beating the odds. An estimated 30,000 people in the US are living with ALS today.
Please keep my family lifted in prayer and know that I’ll be okay. It’s very hard to watch someone going through something and there’s nothing you can do to help. 3 years ago I sat on the sideline watching Clyde (CG3) battle Leukemia and there wasn’t anything I could do to help him. So please, keep them lifted.
I cannot begin to thank you for all of the love you’ve shown this little boy from Town Creek Alabama. If you see me out and about, it’s okay to come over and give me a hug. I’m still the same yesterday, today and tomorrow. I’m approaching this like everything else in my life, with the blessing of God and a fight you cannot begin to imagine.
There is a truth in knowing you are potentially battling some terminal. A truth that changes you so deep down inside that nothing will ever be the same. Your whole world stops on a dime. In the words of Tim McGraw, Some Day I Hope You Get The Chance To Live Like You’re Dying. Love is so much sweeter….Life is so much more simple.
If I could do it all over again, I’d still chose my life. I still have a lot of living, loving and laughing to do.
We all need to stand for something, whether it’s ALS, Leukemia or some other illness that’s searching for a cure. Who knows, the life you save, just might be someone you love or maybe your own.
May God Bless you and yours….